Join us at the Motor Neurone Disease (MND) Association and play a pivotal role in ensuring people affected by MND have access to new and innovative treatments. As a Senior Policy Advisor (Access to Treatments), you will be essential in providing the Association with the vital information and analysis needed to influence health and care policymakers.

You will lead on issues related to access to treatments and healthcare, including the availability of medicines, genetic tests, and new care models. You'll monitor the policy landscape and regulatory environment, develop policy positions, and engage with external partners to maximise the availability and accessibility of treatments and clinical trials.

You will collaborate closely with our internal colleagues, particularly the Senior Policy Advisor for Research and Healthcare, to enhance the availability of clinical trials. Your work will involve analysing policy issues, identifying solutions, and preparing briefing documents for senior colleagues.

Engagement with a variety of stakeholders, including clinicians, researchers, and people with MND, is key. You will also liaise with organisations such as the National Institute for Health and Care Excellence (NICE), the Medicines and Healthcare products Regulatory Agency (MHRA), and NHS England, communicating the MND Association's positions through policy papers, briefings, and reports.

Additionally, you will support our public affairs and campaigning efforts to influence politicians and decision-makers on issues related to access to treatments. This includes conducting research, producing policy reports, and organising consultation meetings, seminars, and conferences.

Hybrid Working Expectations: up to 2 days per week office attendance

(Flexibility to attend the office more regularly on occasion may be required to meet business needs.)
We understand the importance of work-life balance and are committed to supporting our employees' needs. We are open to part-time applications and job shares. If you are looking for flexibility, please clearly indicate your preferred working arrangement in your supporting statement.

What are we looking for?

Strong knowledge and understanding of the policy environment governing access to treatments. You'll bring demonstrable experience working with key organisations including NICE, MHRA, and NHS England, as well as industry stakeholders.

Your expertise will include analysing and addressing policy issues in areas such as research, treatment access, and care. You will be comfortable working with complex policy challenges, using your strong analytical and research skills to identify solutions.

We value excellent communication, negotiation, and influencing skills, along with the ability to prioritise and manage a demanding workload. You will thrive both working independently and as part of a collaborative team.

For full role responsibilities please view the job description located within the Candidate Pack.

Our Benefits

28 days holiday, rising to 33 days after 5 years' service, plus Bank Holidays
Access to UK Healthcare which includes reimbursement for dental appointments, eyecare, Health & Wellbeing screening and therapies
Access to a 24/7 phone and video GP Service
Life assurance
Confidential counselling helplines
Salary sacrifice schemes to include: Cycle to work & Buy and sell annual leave
BenefitHub which offers lifestyle discounts and offers on everyday shopping
Enhanced pension scheme
Opportunities for training and personal development
Hybrid working

About Us

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

We are committed to equality and value diversity. We are working hard to remove perceived and actual barriers to participation for people with and affected by MND, current and future staff, volunteers, and stakeholders.

We guarantee interviews for disabled applicants that meet the requirements of the role as part of our commitment to the Disability Confident Scheme. Reasonable adjustments can be made as required.
IMPORTANT INFORMATION
Adverts may be closed early, or interviews arranged once sufficient applications are received. Early applications are encouraged.
Sponsorship: If you require sponsorship for this role, you must clearly declare this with/on your application form so that we can consider whether you meet the eligibility criteria for sponsorship, either as a skilled worker or new entrant.
DBS: Depending on the nature of your role you may be required to complete a criminal records check with the Disclosure and Barring Service (DBS).
Reasonable Adjustments and Alternative Applications: Should you need any adjustments to the recruitment process, at either application or interview please contact us for support.
To provide an inclusive application process, we are open to receiving alternative applications from candidates who may find it difficult to complete our online form.
Recruitment Agencies: We work hard to fill our roles directly and request that recruitment agencies do not contact us in relation to this role.

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MND Association

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Senior Policy Adviser